WHAT PEOPLE ARE SAYING!
About Pulse and Our Program
To date we have trained hundreds of people in small groups to become Family Centered Patient Advocates.
There was a great flow to the presentation and it was easy to understand. I think the role playing portion was very helpful.
Good presentation. Very good tools provided. Role plays were very effective to make points and see what may happen.
Excellent speaker that informed us of things we weren't aware of before.
A much needed help in the communities.
Excellent, excellent workshop.
Very informative. Reinforced the importance of caring & sensitivity to patients with disabilities.
Participant at a professional workshop on caring for patients with disabilities
Good program. Need more frequency.
Excellent, very informative.
"Thank you. You did exactly what I had hoped you would do....inspire us."
Jean Rexford, Connecticut Center for Patient Safety
“Your enthusiasm and commitment to helping teens increase awareness about patient safety and good healthcare infused your classroom presentation. You had vital and timely information to share and did so in an engaging manner.”
Susan Okun, LCSW, High School Social Worker
“Your presentation “The Patient Perspective on Quality and Safety” was highly relevant and well received. More so, it will be useful to our members as we work together to unite the different perspectives of the pharmacy profession to best serve our patients and communities.”
Henri R. Manasse Jr. , PhD, ScD, R.PH, President, National Conference of Pharmaceutical Organizations
“The audience evaluations rated several items including: presenters methodology, question management, use of time, and the program met personal goals. Your overall rating was 3.9 of a possible 4- that is excellent!”
Anne Matkovics, FAHQ Conference Planning Team Member
Speakers such as you help create high quality and standards for our Medical School and its programs.
David S. Kountz, MD Director, Medical Grand Rounds
Robert Wood Johnson Medical School
With your participation on the patient-consumer panel, the committee members gained a better understanding the needs, values, and preferences of patients and consumers that directly affect patient safety and medication management, a key element of the committee's charge.
J. Lyle Bootman, Ph.D and Linda Cronenwett, PhD, RN
Co-Chairs, IOM Committee on Identifying and Preventing Medication Errors
“Your brave perspective as a survivor and national patient consultant really got the audience’s attention.”
Kyle Dooley Kinder, Vice President, Educational Services, Hospital Association
From Patients and Families
I was my husband's (Michael) advocate on many occasions, relating to his brain tumor diagnosis in 2007. The doctor insisted on managing the tumor on his own without a neurologist who would be the specialist for this condition. I was persistent in following up because of my knowledge, some of which was acquired through PULSE. The actions taken were: Verifying medication type and dosage and insisted on seeing a specialist in the field of pituitary adenomas, the kind of tumor he has.
I am a medical professional and a transgender man, (a man born in a female body). When I went for a hysterectomy, it was beneficial to the medical staff as well as myself to have Ilene Corina from PULSE, a trained, professional patient safety advocate. The doctor wanted to put me on a post-partum floor and Ilene was able to convince the doctor not to. Further, the advocate was able to answer very personal and difficult questions of staff so I was able to concentrate on healing.
Ilene herself met with me and encouraged me to create a written record of all previous surgeries, allergies, and prescriptions I was taking. Since I thought I had finished with all medical treatments, I followed Ilene's suggestions more as a fanciful friendly duty. I was very grateful though later that year when I was again referred to another surgeon for a different medical concern. How comforting and reassuring was it to me to have my list of surgeries ready and available as well as the prescriptions and allergies. I was able to fill out my medical history easily and completely and with confidence that I was giving the new doctor an accurate medical history which no doubt helped him to treat me as well.
Ilene Corina from PULSE trained the woman who was my advocate when I was diagnosed with breast cancer. A recent widow, I was overwhelmed by the diagnosis and feeling alone and very vulnerable. My advocate accompanied me to my pre-surgical doctor visits and helped me to ask the questions I had discussed with her beforehand. She calmly recorded the various treatment options as they were proposed and was able to discuss them again with me later as I mulled over which treatment path I would take.